tag:blogger.com,1999:blog-7763380180041018095.post8926449746285662110..comments2024-03-28T11:33:46.478-05:00Comments on PB+J Babes: jojo + PFAPAAmber Masseyhttp://www.blogger.com/profile/13992452665593824030noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-7763380180041018095.post-83159091079542430042017-08-24T14:17:49.805-05:002017-08-24T14:17:49.805-05:00SO glad y'all have a diagnosis and a treatment...SO glad y'all have a diagnosis and a treatment plan! We will be praying for Jolie for the next few months and throughout her surgery. So glad you have a great support system and SO thankful for the medicine we have access to here in the USA, right??? :) xox...<br /><br />NaomiNaomi Carpenterhttps://www.blogger.com/profile/11880649970311440479noreply@blogger.comtag:blogger.com,1999:blog-7763380180041018095.post-1332076168455686352017-08-24T08:36:04.590-05:002017-08-24T08:36:04.590-05:00Wow! I've never heard of this but I am SO glad...Wow! I've never heard of this but I am SO glad you have answers now. The momma heart can only take so much uncertainty. Prayers for complete recovery! That tonsillectomy will be a game changer girl! Keep staying strong :) Katy Wrighthttps://www.blogger.com/profile/03312055539245866465noreply@blogger.comtag:blogger.com,1999:blog-7763380180041018095.post-19078906999311540402017-08-24T07:55:11.797-05:002017-08-24T07:55:11.797-05:00My son had the same exact thing and the doctors co...My son had the same exact thing and the doctors couldn't figure it out for over a year. After countless doctor visits we finally started researching the fevers and ran across PFAPA online. Since our local pediatrician wasn't familiar with PFAPA, I called a Children's Hospital a couple hours a way and they had a doctor who was thankfully familiar with PFAPA. It took one visit with that doctor to know it was for certain that he had PFAPA. We scheduled his tonsillectomy (he kept his adenoids) and it was the best decision we ever made (definitely hard and scary). He was 4 at the time of the tonsillectomy and he is 8 now and hasn't had an episode since. So glad you have answers and a plan in place for your little one. If you ever need to chat please don't hesitate to contact me.emhttps://www.blogger.com/profile/18093933009744640914noreply@blogger.com